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Pancsofar, Nadya; Petroff, Jerry G.; Rao, Shridevi; Mangel, Alyssa – Research and Practice for Persons with Severe Disabilities, 2019
Fathers of children with complex disabilities can play an important role in the development and learning of their children; however, very little is known about their school involvement experiences. We conducted semi-structured interviews with 15 fathers of children with complex disabilities to learn how these fathers perceived their involvement in…
Descriptors: Fathers, Parent Role, Parent School Relationship, Parent Attitudes
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Carter, Erik W.; Boehm, Thomas L. – Research and Practice for Persons with Severe Disabilities, 2019
Although the importance and influence of spirituality in the lives of youth and young adults have garnered much attention, few studies have focused on the religious and spiritual lives of young people with intellectual and developmental disabilities (IDD). We examined the congregational activities, spiritual practices, and strength of religious…
Descriptors: Intellectual Disability, Developmental Disabilities, Autism, Religion
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Waters, Chelsea L.; Friesen, Amber – Research and Practice for Persons with Severe Disabilities, 2019
Families raising young children diagnosed with multiple disabilities encounter experiences that are often unique and extend well beyond the early childhood years due to the intensity and severity of their child's needs. The contexts of these families must be understood to provide meaningful services and supports, particularly during the child's…
Descriptors: Young Children, Child Rearing, Multiple Disabilities, Parent Attitudes
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Carter, Erik W.; Bendetson, Sonni; Guiden, Carrie Hobbs – Research and Practice for Persons with Severe Disabilities, 2018
Although calls to expand integrated employment opportunities have permeated recent legislative and policy initiatives in the United States, substantial numbers of adults with severe disabilities still work in segregated settings. We examined findings from events held in eight communities to solicit the views of parents and other family members (n…
Descriptors: Severe Disabilities, Adults, Parent Attitudes, Sheltered Workshops
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Carter, Erik W.; Boehm, Thomas L.; Biggs, Elizabeth E.; Annandale, Naomi H.; Taylor, Courtney E.; Loock, Aimee K.; Liu, Rosemary Y. – Research and Practice for Persons with Severe Disabilities, 2015
Can young people with intellectual and developmental disabilities be known for their strengths? This mixed-method study explored the strengths of 427 youth and young adults with intellectual disability and/or autism (ages 13-21) from the vantage point of their parents. Using the Assessment Scale for Positive Character Traits-Developmental…
Descriptors: Mental Retardation, Autism, Mixed Methods Research, Youth
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Rossetti, Zachary; Lehr, Donna; Lederer, Leslie; Pelerin, Dana; Huang, Shuoxi – Research and Practice for Persons with Severe Disabilities, 2015
This article describes a qualitative study that examined how 23 young adults with pervasive support needs and limited functional communication spent their time and how their parents (n = 23) and direct support professionals (DSPs; n = 2) defined meaningfulness in relation to the young adults' experiences. Data were collected through…
Descriptors: Parent Attitudes, Young Adults, Disabilities, Semi Structured Interviews
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Burke, Meghan M.; Sandman, Linda – Research and Practice for Persons with Severe Disabilities, 2015
Since its initial passage in 1975, parent involvement had been a cornerstone of the Individuals With Disabilities Education Act (IDEA). However, parents face many barriers in voicing their concerns to professionals. One way for parents to share their insights and create systemic change is during an IDEA reauthorization. Yet, although the public is…
Descriptors: Federal Legislation, Educational Legislation, Disabilities, Equal Education
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Shogren, Karrie A.; Forber-Pratt, Anjali J.; Nittrouer, Christine; Aragon, Steven R. – Research and Practice for Persons with Severe Disabilities, 2013
This paper documents the experiences of a group of parents who came together to form a human service cooperative in their local community to address the needs of their adult children with intellectual and developmental disabilities. Each parent felt that their child's needs were not (or could not be) met by existing providers. Parent leaders who…
Descriptors: Parents, Cooperative Planning, Human Services, Community Programs
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Carter, Erik W.; Lane, Kathleen Lynne; Cooney, Molly; Weir, Katherine; Moss, Colleen K.; Machalicek, Wendy – Research and Practice for Persons with Severe Disabilities, 2013
This study examined 68 parents' views of the self-determination skills and capacities of their young adult children with autism spectrum disorders and intellectual disability (ages 19-21 years). Results indicated parents placed a high value on the importance of all seven component skills (i.e., choice-making skills, decision-making skills,…
Descriptors: Self Determination, Autism, Mental Retardation, Parents
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Shogren, Karrie – Research and Practice for Persons with Severe Disabilities, 2012
Limited research has explored the perceptions of self-determination held by diverse families. In this study, seven mothers of transition-age youth with severe disabilities who were Hispanic were interviewed. Each mother was actively engaged in advocacy related to diverse children with disabilities in their local schools and communities. Mothers…
Descriptors: Disabilities, Values, Cultural Influences, Self Determination
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Brown, Fredda; Traniello, Dina A. – Research and Practice for Persons with Severe Disabilities (RPSD), 2010
An interview was conducted with each of four mothers to gain an understanding of their perceptions of the educational and behavioral history of their children leading up to placement in a residential facility that used aversive interventions, including contingent electric skin shock. Semistructured instruments were used to understand each family's…
Descriptors: Mothers, Punishment, Interviews, Child Rearing
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Wang, Peishi; Michaels, Craig A. – Research and Practice for Persons with Severe Disabilities (RPSD), 2009
This descriptive study gathered quantitative and qualitative data about 368 families in the People's Republic of China who had children with severe disabilities to better understand (a) the perceived needs that families have, (b) the supports available to them, (c) any differences in perceived needs and support between mothers and fathers, and (d)…
Descriptors: Community Services, Family Needs, Mothers, Physical Disabilities
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McCabe, Helen – Research and Practice for Persons with Severe Disabilities (RPSD), 2008
Although there is some reported research on the experiences of parents who have children with autism, very little is known about the experiences of parents in other countries--specifically, China. This study investigated the perspectives of parents on their experiences having children with autism in that country. Seventy eight parents completed…
Descriptors: Autism, Questionnaires, Foreign Countries, Parent Attitudes
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Ferguson, Philip M. – Research and Practice for Persons with Severe Disabilities (RPSD), 2008
The relationship of professionals with families of children and adults with intellectual disabilities is a key component in the planning and delivery of effective and enduring support services. Yet, the history of such relationships is not well understood. After briefly describing the context for these relationships in the early 20th century, a…
Descriptors: Mental Retardation, United States History, Family School Relationship, Parent Teacher Cooperation
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Kim, Kyeong-Hwa; Lee, Youngsun; Morningstar, Mary E. – Research and Practice for Persons with Severe Disabilities (RPSD), 2007
Although research has indicated that parent participation is considered to be one of the most important elements of transition planning, there are a few studies that have sought to measure the involvement of culturally and linguistically diverse parents. Asian Americans are the most diverse of America's leading minority groups and one of the most…
Descriptors: Parent Participation, Disabilities, Korean Americans, Minority Groups
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