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Watson, Joanne; Voss, Hille; Bloomer, Melissa J. – Research and Practice for Persons with Severe Disabilities, 2019
With a focus on the use of narrative approaches, this article is a commentary on decision-making support for people with profound intellectual and multiple disability (PIMD) at the end-of-life. Due to improved health care, people with PIMD are living longer lives than ever before. Therefore, they are increasingly facing decisions relating to…
Descriptors: Preferences, Death, Decision Making, Severe Intellectual Disability
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Reynolds, Michelle C.; Palmer, Susan B.; Barton, Kelli N. – Research and Practice for Persons with Severe Disabilities, 2019
Individuals with severe disabilities and their families can engage in person-centered and family-centered planning for aging using a life course view. Viewing aging within the context of the family and disability is essential because many people with severe disabilities depend on their families for supports in daily living, social relationships,…
Descriptors: Aging (Individuals), Severe Disabilities, Planning, Family Relationship
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Lakin, K. Charlie; Burke, Meghan M. – Research and Practice for Persons with Severe Disabilities, 2019
People aging with severe disabilities face many age- and disability-related challenges that are shared with a range of family members and other caregivers. Although these challenges are often exacerbated by substantial physical, cognitive, communication, health, and other impairments associated with severe disabilities, thematically, they are…
Descriptors: Older Adults, Aging (Individuals), Severe Disabilities, Long Range Planning
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Stancliffe, Roger J.; Nye-Lengerman, Kelly M.; Kramme, Julie E. D. – Research and Practice for Persons with Severe Disabilities, 2019
Little is known about how, when, or why individuals with intellectual and developmental disabilities (IDD) retire. Recognizing the changing needs of older adults with IDD is critical to support person-driven services and development of best practices in aging transitions. Using secondary analysis of the 2016 to 2017 National Core Indicators--Adult…
Descriptors: Aging (Individuals), Older Adults, Intellectual Disability, Developmental Disabilities
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Friedman, Carli – Research and Practice for Persons with Severe Disabilities, 2018
Medicaid Home and Community Based Services (HCBS) waiver programs provide the majority of long-term services and supports for people with intellectual and developmental disabilities (IDD). Relatively new (2014) HCBS rules (CMS 2249-F/2296-F) governing these programs require "meaningful community" integration of people with disabilities…
Descriptors: Stakeholders, Intellectual Disability, Developmental Disabilities, Community Services
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Roberts, Carly A.; Ruppar, Andrea L.; Olson, Amy J. – Research and Practice for Persons with Severe Disabilities, 2018
School administrators play an important role in shaping teaching and learning. However, very little is known regarding how school administrators perceive instruction for students with severe disabilities and how those perceptions shape expectations and visions for instruction. Semistructured interviews were used to interview 12 administrators…
Descriptors: Administrator Attitudes, Semi Structured Interviews, Severe Disabilities, Inclusion
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Gilson, Carly B.; Carter, Erik W.; Bumble, Jennifer L.; McMillan, Elise D. – Research and Practice for Persons with Severe Disabilities, 2018
Families are essential partners in efforts to elevate the employment outcomes of adults with intellectual and developmental disabilities (IDD). We examined the employment-related expectations, preferences, and concerns of 673 parents and other family members of adults with IDD. Participants prioritized paid integrated employment over sheltered…
Descriptors: Family Attitudes, Adults, Employment, Intellectual Disability
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Hudson, Melissa E.; Rivera, Christopher J.; Grady, Maureen M. – Research and Practice for Persons with Severe Disabilities, 2018
In 2008, Browder and colleagues published a meta-analysis on mathematics instruction for learners with significant cognitive disabilities and found that most skills taught to these students were only from two of the five strands recommended by the National Council for Teachers of Mathematics (i.e., Number and Operations, and Measurement). A review…
Descriptors: Mathematics Instruction, Intellectual Disability, Literature Reviews, Teaching Methods
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Walker, Virginia L.; Loman, Sheldon L.; Hara, Motoaki; Park, Kristy Lee; Strickland-Cohen, M. Kathleen – Research and Practice for Persons with Severe Disabilities, 2018
To explore the accessibility of school-wide positive behavioral interventions and supports (SWPBIS) for students with severe disabilities, we conducted a survey of 179 schools implementing SWPBIS during the 2015-2016 school year. Personnel from each school reported the frequency and level of importance of SWPBIS implementation across Likert-type…
Descriptors: Severe Disabilities, Positive Behavior Supports, Inclusion, School Personnel
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Hollingshead, Aleksandra; Williamson, Pamela; Carnahan, Christina – Research and Practice for Persons with Severe Disabilities, 2018
Although a great deal has been written about the complexities of engagement in learning, this is less true for students with severe intellectual disability. The concept of engagement of these students remains strictly behavioral. Engagement as a complex construct, consisting of behavioral, cognitive, and emotional components, must be addressed as…
Descriptors: Severe Intellectual Disability, Learner Engagement, Cognitive Processes, Emotional Response
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Zawacki, Jessica M.; Satriale, Gloria; Zane, Thomas – Research and Practice for Persons with Severe Disabilities, 2018
With the increase of individuals with autism spectrum disorder (ASD) leaving the public school systems with centralized training environments, there needs to be innovation in supporting staff who will find themselves working in various community environments with adolescent or adult learners. Staff training and ongoing supervision is important for…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Supervision
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Ivy, Sarah E.; Hatton, Deborah D.; Wehby, Joseph H. – Research and Practice for Persons with Severe Disabilities, 2018
Children's skill level in using a spoon facilitates increased independence during mealtimes and greater control over the pace and quantity of food intake, which has important implications for health and self-determination. Children with severe multiple disabilities, including cognitive and visual impairment (VI), require intensive instruction to…
Descriptors: Severe Disabilities, Multiple Disabilities, Severe Intellectual Disability, Visual Impairments
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Agran, Martin; Spooner, Fred; Brown, Fredda; Morningstar, Mary; Singer, George H. S.; Wehman, Paul – Research and Practice for Persons with Severe Disabilities, 2018
At the 2016 TASH Conference in St. Louis, a research colloquium was held that focused on the state of selected life-span services for people with severe disabilities. Topics addressed by leading experts in the field included inclusion, teaching academic skills, family support, challenging behavior, supported employment, and voting. This article…
Descriptors: Lifelong Learning, Conferences (Gatherings), Conference Papers, Meetings
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Gee, Kathy; Gonsier-Gerdin, Jean – Research and Practice for Persons with Severe Disabilities, 2018
The purpose of this qualitative study was to examine the experiences and perceptions of 10 first-year teachers who had been trained to provide evidence-based practices, including integrated services and supports, and subsequently took jobs in self-contained, special education elementary and middle-school classrooms designated for students with…
Descriptors: Special Education Teachers, Qualitative Research, Beginning Teachers, Evidence Based Practice
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Friedman, Carli; McNamara, Ellyn – Research and Practice for Persons with Severe Disabilities, 2018
Speech language and hearing (SLH) services can improve people with intellectual and developmental disabilities' (IDD) health, autonomy, and community participation. The aim of this study was to explore how SLH services are offered to people with IDD across the nation, particularly in fiscal year 2015 Medicaid Home and Community Based Services…
Descriptors: Speech Language Pathology, Intellectual Disability, Developmental Disabilities, Health
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