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ERIC Number: EJ955447
Record Type: Journal
Publication Date: 2011
Abstractor: As Provided
Are We Leaving Children with Chronic Illness Behind?
Irwin, Mary Kay; Elam, Megan
Physical Disabilities: Education and Related Services, v30 n2 p67-80 Fall 2011
Novel treatments are improving the prognosis for many illnesses, making it possible to survive diseases that were once considered fatal. With these advancements comes great responsibility to ensure quality of life for those living with chronic illness. Educators are among the group of professionals accountable for ensuring quality of life experiences for students living with chronic conditions. Unfortunately, typical educational systems and policies are not designed to lend support to students battling chronic illness. With limited resources to draw from, well-intended teachers and administrators respond to acute health episodes with impromptu plans, inadvertently creating educational barriers, eliminating the possibility of an equitable educational experience for students with an illness. Looking through the lens of these students, violations of best practice in education are plentiful. Analyzing existing research and laws to understand the path to success achieved for other vulnerable populations will likely guide future research initiatives that may lead to the solution so desperately needed for these children.
Descriptors: Chronic Illness, Educational Experience, Special Needs Students, Student Needs, Federal Legislation, Educational Legislation, Educational Quality, Academic Persistence, Attendance Patterns, School Schedules, Teacher Competencies, Home Schooling
Division for Physical, Health, and Multiple Disabilities, Council for Exceptional Children. 1110 North Glebe Road Suite 300, Arlington, VA 22201. Tel: 888-232-7733; Fax: 703-264-9494; e-mail: email@example.com; Web site: http://www.cec.sped.org
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Authoring Institution: N/A
Identifiers - Laws, Policies, & Programs: Individuals with Disabilities Education Act; No Child Left Behind Act 2001