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Esbensen, Anna J.; Hoffman, Emily K.; Shaffer, Rebecca; Chen, Elizabeth; Patel, Lina; Jacola, Lisa – American Journal on Intellectual and Developmental Disabilities, 2019
The current study evaluates the psychometric properties of the Behavior Rating Inventory of Executive Function (BRIEF) with children with Down syndrome. Caregivers of 84 children with Down syndrome rated their child's behavior with the BRIEF. Teacher ratings were obtained for 57 children. About 40% of children with Down syndrome were reported by…
Descriptors: Executive Function, Children, Down Syndrome, Behavior Rating Scales
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Dieleman, Lisa M.; De Pauw, Sarah S. W.; Soenens, Bart; Van Hove, Geert; Prinzie, Peter – American Journal on Intellectual and Developmental Disabilities, 2018
This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age…
Descriptors: Down Syndrome, Behavior Problems, Child Behavior, Children
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Namkung, Eun Ha; Greenberg, Jan S.; Mailick, Marsha R.; Floyd, Frank J. – American Journal on Intellectual and Developmental Disabilities, 2018
This research examined how parenting adults with developmental disabilities affects parental well-being beyond midlife and into old age. Parents of adults with developmental disabilities (n = 249) and parents of adults without disabilities (n = 9,016), studied in their early 50s and mid-60s, were longitudinally tracked into their early 70s.…
Descriptors: Older Adults, Developmental Disabilities, Parents, Well Being
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Olsen, Darren L. – American Journal on Intellectual and Developmental Disabilities, 2018
Social participation is an important resource for parents in old age, and may be particularly important for parents living with adult offspring with intellectual and developmental disabilities. To evaluate whether socializing with friends and family and participating in social organizations protects against depression in old age, this study…
Descriptors: Parents, Older Adults, Adults, Intellectual Disability
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Sanderson, Kelli A.; Burke, Meghan M.; Urbano, Richard C.; Arnold, Catherine K.; Hodapp, Robert M. – American Journal on Intellectual and Developmental Disabilities, 2017
This study examined who provides informal (or unpaid) supports to people with intellectual and developmental disabilities (IDD). Participants included 657 adult siblings of people with disabilities who responded to a national survey about informal supports in the areas of recreation, employment, and housing. Results indicated that most people with…
Descriptors: Intellectual Disability, Developmental Disabilities, Adults, Siblings
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Magaña, Sandra; Parish, Susan L.; Son, Esther – American Journal on Intellectual and Developmental Disabilities, 2015
The aim of this study was to determine if racial and ethnic disparities in the quality of provider interaction have changed between 2006 and 2010 for children with developmental disabilities and autism spectrum disorders (ASD). Data from the 2005/2006 and 2009/2010 National Survey of Children With Special Health Care Needs were analyzed. Results…
Descriptors: Developmental Disabilities, Autism, Pervasive Developmental Disorders, Children
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Kirby, Anne V.; White, Tamira J.; Baranek, Grace T. – American Journal on Intellectual and Developmental Disabilities, 2015
Caring for children with disabilities contributes to increased levels of parent stress or caregiver strain. However, the potential relationship of sensory features to strain among caregivers of children with autism spectrum disorder (ASD) and other developmental disabilities (DD) is unknown. Sensory features include overreactions, underreactions,…
Descriptors: Child Rearing, Children, Disabilities, Stress Variables
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Jones, Leah; Hastings, Richard Patrick; Totsika, Vasiliki; Keane, Lisa; Rhule, Neisha – American Journal on Intellectual and Developmental Disabilities, 2014
Few research studies have explored how the level of a child's behavior problems leads to psychological distress in parents of children with autism. The authors explored whether psychological acceptance and mindfulness mediated this relationship between child behavior and parental distress. Seventy-one mothers and 39 fathers of children with…
Descriptors: Child Behavior, Behavior Problems, Parents, Well Being
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Piazza, Vivian E.; Floyd, Frank J.; Mailick, Marsha R.; Greenberg, Jan S. – American Journal on Intellectual and Developmental Disabilities, 2014
Among aging parents (mean age = 65, "N" = 139) of adults with developmental disabilities, we examined the effectiveness of multiple forms of coping with caregiver burden. As expected, accommodative strategies of adapting to stress (secondary engagement), used frequently in later life, buffered the impact of caregiver burden, whereas…
Descriptors: Coping, Mental Health, Aging (Individuals), Parents
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Schroeder, Stephen R.; Marquis, Janet G.; Reese, R. Matthew; Richman, David M.; Mayo-Ortega, Liliana; Oyama-Ganiko, Rosa; LeBlanc, Judith; Brady, Nancy; Butler, Merlin G.; Johnson, Tiffany; Lawrence, Linda – American Journal on Intellectual and Developmental Disabilities, 2014
Before the 1990s, research on the early identification and prevention of severe behavior disorders (SBDs), such as aggression, self-injury, and stereotyped behavior, among young children with intellectual and developmental disabilities (IDD), was mostly done with children 3 years or older. More recent work suggests that signs of SBDs may occur as…
Descriptors: At Risk Persons, Aggression, Self Destructive Behavior, Injuries
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Jackson, Jeffrey B.; Roper, Susanne Olsen – American Journal on Intellectual and Developmental Disabilities, 2014
Utilizing grounded theory qualitative research methods, a model was developed for describing parental adaptation after voluntary placement of a child with severe or profound developmental disabilities in out-of-home care. Interviews of parents from 20 families were analyzed. Parents' cognitive appraisals of placement outcomes were classified…
Descriptors: Parents, Parent Attitudes, Adjustment (to Environment), Residential Programs
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Esbensen, Anna J.; Mailick, Marsha R.; Silverman, Wayne – American Journal on Intellectual and Developmental Disabilities, 2013
Parental characteristics were significant predictors of health, functional abilities, and behavior problems in adults with Down syndrome ("n" ?=? 75) over a 22-year time span, controlling for initial levels and earlier changes in these outcomes. Lower levels of behavior problems were predicted by improvements in maternal depressive…
Descriptors: Parents, Individual Characteristics, Predictor Variables, Behavior Problems
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Carter, Erik W.; Lane, Kathleen Lynne; Cooney, Molly; Weir, Katherine; Moss, Colleen K.; Machalicek, Wendy – American Journal on Intellectual and Developmental Disabilities, 2013
Fostering student self-determination is now considered an essential element of special education and transition services for children and youth with intellectual disability and/or autism. Yet, little is known about the pivotal role parents might play beyond the school campus in fostering self-determination among their children with developmental…
Descriptors: Parents, Parent Role, Self Determination, Skills
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Poon, Kenneth K. – American Journal on Intellectual and Developmental Disabilities, 2013
This study sought to understand the parental expectations of social attainments in the postschool years. The parents of 20 adolescents with autism spectrum disorders (ASD) attending special schools were interviewed. Most expected their children would be working in sheltered workshops or unemployed. All parents indicated that their children would…
Descriptors: Parents, Expectation, Adolescents, Autism
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Bilder, Deborah A.; Pinborough-Zimmerman, Judith; Bakian, Amanda V.; Miller, Judith S.; Dorius, Josette T.; Nangle, Barry; McMahon, William M. – American Journal on Intellectual and Developmental Disabilities, 2013
Prenatal and perinatal risk factors associated with intellectual disability (ID) were studied in 8-year-old Utah children from a 1994 birth cohort (N = 26,108) using broad ascertainment methods and birth records following the most current recording guidelines. Risk factor analyses were performed inclusive and exclusive of children with a known or…
Descriptors: Prenatal Influences, Perinatal Influences, Risk, Young Children
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