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Nash, Rebecca; Riley, Catharine; Paramsothy, Pangaja; Gilbertson, Kendra; Raspa, Melissa; Wheeler, Anne; Dziuban, Eric J.; Peacock, Georgina – American Journal on Intellectual and Developmental Disabilities, 2019
Children with fragile X syndrome (FXS) display wide-ranging intellectual and behavioral abilities that affect daily life. We describe the educational setting of students with FXS and assess the relationships between school setting, co-occurring conditions, and functional ability using a national survey sample (n = 982). The majority of students…
Descriptors: Genetic Disorders, Intellectual Disability, Behavior Problems, Individualized Education Programs
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Qian, Xueqin; Larson, Sheryl A.; Tichá, Renáta; Stancliffe, Roger; Pettingell, Sandra L. – American Journal on Intellectual and Developmental Disabilities, 2019
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We evaluated effects of Active Support training on staff assistance, and social and nonsocial engagement in 75 individuals with intellectual and developmental…
Descriptors: Intellectual Disability, Randomized Controlled Trials, Developmental Disabilities, Behavior Problems
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Hagiwara, Mayumi; Shogren, Karrie A.; Shaw, Leslie A. – American Journal on Intellectual and Developmental Disabilities, 2019
This secondary analysis examined the impact of respondent-level factors on scores on the "Supports Intensity Scale--Children's Version" (SIS-C) for children and youth with intellectual disability to determine if there were any significant differences in the SIS-C scores by different respondent pairs when considering children's age,…
Descriptors: Children, Youth, Intellectual Disability, Scores
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Dieleman, Lisa M.; De Pauw, Sarah S. W.; Soenens, Bart; Van Hove, Geert; Prinzie, Peter – American Journal on Intellectual and Developmental Disabilities, 2018
This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age…
Descriptors: Down Syndrome, Behavior Problems, Child Behavior, Children
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Adams, Dawn; Clarke, Samantha; Griffith, Gemma; Howlin, Pat; Moss, Jo; Petty, Jane; Tunnicliffe, Penny; Oliver, Chris – American Journal on Intellectual and Developmental Disabilities, 2018
It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of…
Descriptors: Mothers, Stress Variables, Genetic Disorders, Depression (Psychology)
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Hodnett, Jennifer; Scheithauer, Mindy; Call, Nathan A.; Mevers, Joanne Lomas; Miller, Sarah J. – American Journal on Intellectual and Developmental Disabilities, 2018
Smith-Magenis syndrome (SMS) is a genetic disorder, commonly caused by a 17p11.2 deletion, affecting the Retinoic Acid Induced 1 gene. It affects approximately 1 in 25,000 individuals, with over 90% engaging in challenging behaviors. Function-based treatments, using the principles of applied behavior analysis, have consistently been shown to…
Descriptors: Functional Behavioral Assessment, Behavior Problems, Genetic Disorders, Developmental Delays
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Kirk, Hannah; Gray, Kylie; Ellis, Kirsten; Taffe, John; Cornish, Kim – American Journal on Intellectual and Developmental Disabilities, 2017
Children with intellectual and developmental disabilities (IDD) experience significant difficulties in attention, learning, executive functions, and behavioral regulation. Emerging evidence suggests that computerized cognitive training may remediate these impairments. In a double blind controlled trial, 76 children with IDD (4-11 years) were…
Descriptors: Attention Control, Training, Academic Achievement, Executive Function
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Chan, Wai; Smith, Leann E.; Greenberg, Jan S.; Hong, Jinkuk; Mailick, Marsha R. – American Journal on Intellectual and Developmental Disabilities, 2017
The present investigation explored long-term relationships of behavioral symptoms of adolescents and adults with developmental disabilities with the mental health of their mothers. Fragile X premutation carrier mothers of an adolescent or adult child with fragile X syndrome (n = 95), and mothers of a grown child with autism (n = 213) were…
Descriptors: Behavior Problems, Adolescents, Adults, Genetic Disorders
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Frost, Kyle M.; Hong, Natalie; Lord, Catherine – American Journal on Intellectual and Developmental Disabilities, 2017
Individuals with autism spectrum disorder (ASD) tend to have significant delays in adaptive functioning. In this study, the relationship between adaptive behavior and ASD symptomatology was investigated in minimally verbal, school-aged children with ASD (n = 333). Both the social affect (SA) and restricted and repetitive behavior (RRB) domains…
Descriptors: Autism, Pervasive Developmental Disorders, Behavior Problems, Correlation
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Zablotsky, Benjamin; Colpe, Lisa J.; Pringle, Beverly A.; Kogan, Michael D.; Rice, Catherine; Blumberg, Stephen J. – American Journal on Intellectual and Developmental Disabilities, 2017
Children with autism spectrum disorder (ASD) require substantial support to address the core symptoms of ASD and co-occurring behavioral/developmental conditions. This study explores the early diagnostic experiences of school-aged children with ASD using survey data from a large probability-based national sample. Multivariate linear regressions…
Descriptors: Children, Autism, Pervasive Developmental Disorders, Behavior Problems
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Zeedyk, Sasha M.; Blacher, Jan – American Journal on Intellectual and Developmental Disabilities, 2017
This study identified trajectories of depressive symptoms among mothers of children with or without intellectual disability longitudinally across eight time points. Results of fitting a linear growth model to the data from child ages 3-9 indicated that child behavior problems, negative financial impact, and low dispositional optimism all…
Descriptors: Mothers, Depression (Psychology), Children, Intellectual Disability
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Courtemanche, Andrea B.; Black, William R.; Reese, R. Matthew – American Journal on Intellectual and Developmental Disabilities, 2016
Research has suggested that individuals who engage in self-injurious behavior may have enhanced expressions of pain, which contradicts previous assertions of blunted pain sensitivity in this population. The purpose of this study was to measure expressions of pain among young children being evaluated for autism and other neurodevelopmental…
Descriptors: Injuries, Self Destructive Behavior, Behavior Problems, Young Children
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Cuskelly, Monica – American Journal on Intellectual and Developmental Disabilities, 2016
The contribution of childhood sibling relationships to adult sibling relationships and intention to provide care was investigated in a sample in which one member of each dyad had Down syndrome. Thirty-nine adult siblings of an adult with Down syndrome who had participated in a study of sibling relationships in childhood/adolescence provided data…
Descriptors: Siblings, Sibling Relationship, Adults, Down Syndrome
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Robinson, Ashley N.; Roberts, Jane E.; Brady, Nancy C.; McQuillin, Samuel D.; Warren, Steven F. – American Journal on Intellectual and Developmental Disabilities, 2016
The present study examined the relationship between salivary cortisol and maternal responsiveness in mothers of boys with fragile X syndrome (FXS). Maternal responsivity is strongly associated with child outcomes, and children with FXS are at risk for compromised development due to intellectual disability and problem behavior. Increased…
Descriptors: Correlation, Metabolism, Mothers, Responses
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Tassé, Marc J.; Schalock, Robert L.; Thissen, David; Balboni, Giulia; Bersani, Henry, Jr.; Borthwick-Duffy, Sharon A.; Spreat, Scott; Widaman, Keith F.; Zhang, Dalun; Navas, Patricia – American Journal on Intellectual and Developmental Disabilities, 2016
The Diagnostic Adaptive Behavior Scale (DABS) was developed using item response theory (IRT) methods and was constructed to provide the most precise and valid adaptive behavior information at or near the cutoff point of making a decision regarding a diagnosis of intellectual disability. The DABS initial item pool consisted of 260 items. Using IRT…
Descriptors: Item Response Theory, Test Items, Test Construction, Intellectual Disability
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