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EJ975739 - "We Are All There Silently Coping." The Hidden Experiences of Parents of Adults with Asperger Syndrome

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ERIC #:EJ975739
Title:"We Are All There Silently Coping." The Hidden Experiences of Parents of Adults with Asperger Syndrome
Authors:Griffith, Gemma M.Totsika, VasilikiNash, SusieJones, Robert S. P.Hastings, Richard P.
Descriptors:Asperger SyndromeSocial IsolationAdultsParentsCopingOlder AdultsFamily EnvironmentPhenomenologyAdvocacyFamily RelationshipSocial Support GroupsSonsInterventionPervasive Developmental Disorders
Source:Journal of Intellectual & Developmental Disability, v37 n3 p237-247 Sep 2012
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Publisher:Informa Healthcare. Telephone House, 69-77 Paul Street, London, EC2A 4LQ, UK. Tel: 800-354-1420; e-mail: healthcare.enquiries@informa.com; Web site: http://informahealthcare.com/action/showJournals
Publication Date:2012-09-00
Pages:11
Pub Types:Journal Articles; Reports - Research
Abstract:Background: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature. Method: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA). Results: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns. Conclusions: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested. (Contains 1 table and 1 note.)
Abstractor:As Provided
Reference Count:43

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Record Type:Journal
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ISSN:ISSN-1366-8250
Audiences:N/A
Languages:English
Education Level:N/A
Direct Link:http://dx.doi.org/10.3109/13668250.2012.701729
 

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